I have decided to do a series of, What is…posts, looking at the different medical diagnosis’s we have in our family. And there’s a few! What is autism? Is the obvious place to start. I’ve touched on the subject, and talked about what is and isn’t in various posts, but this will the first post looking directly at what autism is. I’m will then be following up with, What is Chromosome Micro Deletion? What is Fibromyalgia? Then possibly some others like Anxiety Disorder, ADHD, Sensory Processing Disorder, Pathological Demand Avoidance, Social Anxiety, PTSD, Depression….like I said, I’m not short of subject matter.
I’m far an “expert” on all these things, they are things I’ve lived through myself or watched those around me live through them. Part of my way of coping, especially with the conditions those around my that I love have to live with is. Researching as much as I can, to help them as best as I can. Now I want to share what I’ve learnt with as many people as I can. That after all, is the whole point of this blog.
Everyone seems to have heard of autism these days, but how many people actually know what autism is? When I see various people talking about what autism is, whether that’s directly to me, or seeing posts online. I have to be honest, it makes me wince. More often than not, they are completely wrong. There is a lot more awareness that autism is a thing, but the awareness of what autism actually is. And what it means to be autistic, still leaves a lot to be desired.
Of course the vary nature of the condition probably doesn’t help, it’s a vast spectrum. Every autistic person is different, and some have other things like learning difficulties, anxiety disorders etc.., and some don’t. If you don’t know anyone who is autistic, how much are you likely to know? When Jack got his diagnosis, I knew nothing. I vaguely could remember hearing about it, somewhere in my life, that was it.
So what is autism?
The National Autistic Society says,
“Autism is a lifelong, developmental disability that affects how a person communicates with and relates to other people, and how they experience the world around them.”
Is that what you all had in your mind, when you started reading this? If you thought something please leave a comment saying what. I’d like to hear what people thought and why.
I’d also like to add what the NHS has on their website about, which makes a very important point.
Being autistic does not mean you have an illness or disease. It means your brain works in a different way from other people.
It’s something you’re born with or first appears when you’re very young.
If you’re autistic, you’re autistic your whole life.
Autism is not a medical condition with treatments or a “cure”. But some people need support to help them with certain things
Other than the “it appear when very young” bit, you are born autistic. That’s a very important thing for people to remember. Sadly, people get drawn into looking for “cures” or blaming it on vaccines. I have two autistic children, I have completely accepted who they are. The difficulties they face, but also embraced what they are good at.
Acceptance is the latest buzzword, that is replacing awareness. Most people are aware of autism now, what needs to be worked on. Is people accepting what it is, and what it means. I hope this explained that well enough for people to understand. It can be a difficult thing to grasp when you around it all the time, so asking people from the outside to fully grasp it. I think is asking a lot, but if we can get people to at least know the basic facts. Then we will have made progress. As always, thank you for reading, and your continued support.