Summer holidays

Summer holidays

Originally I had the idea to write about the transition to the summer holidays from school, which is something Jack finds difficult. It’s perhaps unfair to say we dread the them coming round, but the first week or two are always very challenging. But it’s been a weird year, and although Jack did go back to school for a bit. It doesn’t feel like normal, and Jack has mostly spent his time on his Xbox. So I’ll leave that on the back burner, until next year.

His routine has been all over the place for months, so I don’t think the boy knows what’s going on anymore. He broke his TV in a meltdown a few weeks back, so he has his Xbox in the living room at the moment. Which he is loving, far too much for my liking. It’s keeping him happy, and entertained at least.

Spending time with the kids

I’m looking at slowing the blogging down for this month, and as much time doing stuff with the kids as I can. Obviously we will no doubt share some of the things we do on here, whenever we we do anything now they both ask if it’s going on the website. Which is nice, I’m happy that they are proud to show of the things the do.

We cancelled our holiday to Devon this year, and booked for 2 weeks next year instead. Which is something I’m really looking forward too. It does mean I have to keep the kids entertained without a holiday, and some of the things we’d like to do not open, or we are unsure about doing.

We got a small inflatable pool for the garden, which Lily loves splashing around in. With the heatwave that’s forecast I might be getting in it myself soon hah. We are going to try and have as much fun as possible, during this unusual summer.

Summer holidays

Looking towards school

Thinking ahead, does anyone have any idea what’s happening with school? Jack will go back in September, but it all seems a bit unclear with Lily. To be honest from September, Lily and school is probably going to be a “hot topic”. The EHCP school promised to apply for this year isn’t materialising, leading to a greater feeling of we need to go about it ourselves. And start looking into “special schools” for Lily. I guess we will see what happens in September.

I hope you are all enjoying your summer holidays, whatever you are getting up to. As always, thank you for reading.

Dad Does Autism

Autism and coping with special occasions

Autism and coping with special occasions

We had a busy weekend, the birthdays come thick and fast this time of year in our family. So I thought this was a good time to talk about autism and coping with special occasions. I’ll talk about the weekend we’ve had, and then talk about strategies at the end. They are very much the double edged sword in our house. Both Jack and Lily enjoy celebrating birthdays, Christmas etc.. but the change in routine, the excitement, family gatherings can often become too much for both of them.

But, they both expectations of what happens on birthdays and Christmas, so when we tried to not to as much to help with their sensory input and routine. That upset them. So it’s a very fine line we tread, between keeping them happy and celebrating special occasions, but not over stimulating them.

This weekend

This weekend was a busy one, there was a barbecue at my brothers house. For my brother and dads birthday’s, with a few family members there. Jack was happy as he had 2 dogs to play with, and Lily had her cousin to play with. It probably helped that due to what’s happening in the world right now, there was only a small number there. But Jack coped really well, his anxiety which would normally be through the roof, was manageable.

The dogs certainly helped, especially as they chased each other and were continuously play fighting, which Jack found hilarious. He was chatty, fairly calm and even watched us playing cricket. He didn’t want to play, but would happily fetch the ball. So he sort of was.

As for Lily, she loves playing with her cousin and she spent the entire time by his side. Playing football, cricket, with the dogs and generally getting up to mischief. Which was lovely to see. He is a couple of years younger than Lily, which puts them at a very similar level developmentally.

Lily is both girly and tomboyish, she’s happy playing either the typically boy or girl games. She seems to get on better with boys than girls though, as most of the close friends she has created have been boys. At school and even at nursery before that.

Mum’s Birthday

Autism and coping with special occasions

Saturday was nice, and then it rolled into Sunday which was Mum’s birthday. When it comes to autism and coping with special occasions, 2 days in a row is a very big ask. We also had the issue of the birthday routine. When it’s one of our birthdays, we always go out for a meal. Eating out isn’t always easy with Jack, as he finds overwhelming, the sensory input and his anxiety can trigger meltdowns.

We have learned ways of trying to manage it for him, and last year he was coping really well and really enjoying going out for meals. Of course this year we haven’t been anywhere, and it’s certainly a worry that we might be back to square one. When we eventually do go out for a meal again.

Mum’s birthday was more of a struggle

After Saturday, and Jack had stayed at his overnight respite on Friday, Jack was pretty tired on Sunday. Just like the rest of us, tiredness makes Jack less tolerant. We had prepared him, and Lily that we would t be going out, and that we would order in pizza instead. Which they both seemed happy with. We also planned to go for a walk around, a local nature reserve.

We were later than planned going to the nature reserve. Natalie has fibromyalgia, and Saturday has also taken its toll on her. She needed time to rest and for medication to work before we could go. With all of this by the time we got there, Jack was very anxious and on edge. The nature reserve has several ponds, the first one where the car park is tends to be very busy. Especially on a Sunday.

Once you get past that it thins out and you don’t see too many people. Jack was very argumentative as we walked around the first pond, a sure sign he’s struggling with his anxiety. Once we got past that bit, he calmed down other than getting annoyed with flies.


Nature reserve den

The fairy garden

Lily was really excited to see the reserves fairy garden. Which is a “designated area”, that’s been turned into a fairy garden, where you can add your own creations to it. It’s pretty cool, and not something you’d expect to see in a place like this. It’s not an official thing, just something someone started around a tree.

I know there have been some issues with vandals in the past, but it’s always been in good shape when we’ve been there. It also means it looks different every time we go. Which is pretty amazing. Now as well as adding something to this garden, we have plans to make our own at home. Which Lily is very excited about.

Fairy garden

It turns out the nature reserve is bigger than I realised, despite having been there a number of times. As we found some different paths and several ponds I’d never seen before, where it was even quieter. This was great for Jack, who was much happier. We did end up getting a bit lost, and Jack found the way back for us. Using the map on the PokemonGo app, to find the way back to the pokestop at the car park. Something Jack was extremely proud of!

Pizza to finish the day

We finished the day off by visiting Natalie’s parents, and ordering some pizza in. After a busy weekend, the kids were ready to scoff down some pizza. All 3 of Natalie, Jack and Lily find it difficult to go to Natalie’s parents house. Natalie’s sister who had severe disabilities passed away last year. She lived at home with 24 hour care from carers, meaning the house was always busy (often chaotic) and noisy. Jack never liked going because of those reasons, and often wouldn’t go for visits and stay at home with me.

Now it is a big house that feels empty, and Jack finds that just as difficult. Just as we all do, the quietness serves as a constant reminder of a loved one who is no longer there. His gran also had an accident, knocking a cupboard with her wheelchair, which saw a teapot fall and hit her on her shoulder. Jack was very quiet during the visit, and at times argumentative. When we got home and Jack went to bed, he burst into tears.

This was actually a great thing. You may have heard the MYTH, that autistic people don’t feel empathy or love. The truth is of course they do, but like Jack they can find showing different emotions difficult. Or they show in a different way than what is considered “normal”. Jack letting his emotions out like that is a positive thing.

The strategies for autism and coping with special occasions

When it comes to autism and coping with special occasions, you have to think ahead. You have to strategies, you have to plan everything out and you have to try and establish routines. All of our birthdays in the house follow the same routine, depending on whether it’s a school day or not. Breakfast, presents (or school), chill out time, meal at a family place. Birthdays are not the time to try somewhere new. There is already enough going on in the autistic child’s mind, that it would likely be a recipe for disaster.

Start reminding the child weeks in advance that the occasion is coming up, if it’s someone else’s birthday. Make sure they see all the presents they will be giving before hand. Plan early and tell them what you will be doing on the day. The more prepared they are the better. Now every autistic person is different, some may be able to tolerate any change, some might not be able to cope with any at all. You are best placed to judge that.

We have had lots of very eventful and stressful birthdays with Jack. It would have been easier to just do very little for birthdays, but Jack wanted to celebrate them, he wants to go out and do things. So we put in the hard work to figure out how to make it work, and it was doing. Like i said before though, I just hope the current pandemic doesn’t put us back to square one.

The last and most important point I’d like to make is, don’t put pressure on them, and yourself to make everything “perfect”. It probably isn’t going to be. There will likely be anxiety spikes or meltdowns. You might have to walkaway from something that was planned, because they just can’t cope with it. That is okay, make adjustments and just find a way for everyone to enjoy themselves and be happy. At the end of the day that’s what is important. So, that’s my post about autism and coping with special occasions, I hope there’s some useful bits in there for people. Also that it gives a little insight into what birthdays are like for families like ours. This was a good weekend and Jack and Lily cooed really well on the whole.

Then of course there’s Christmas, but that needs a post all of its own, as that can be really….interesting. As always thank you for reading.

Dad Does Autism

Easy to understand Online safety social story

Easy to understand Online safety social story

Keeping your children safe online, is something all parents have to think about these days. We were given a easy to understand online safety social story by Jack’s School. I believe in giving Jack as much freedom as we possibly can. About a year ago we ran into some problems online, with Jack using TikTok.

If you are not aware of TikTok, it is a social video sharing app. Jack discovered it and became obsessed with making videos. He does all sorts of stuff with the videos, adding music, filters and stuff beyond what I know how to do. I personally think it is a great creative outlet for him, and encourage him to work on his videos. Here is an an example of the type of things he does.


Message problems


The problems came with it being a social media app, meaning you could message people. Something Jack wanted to do. You can turn messages off, which is what we did, but it didn’t take Jack long to figure out how to turn them back on.

The problem with Jack messaging people is his lack of understanding of how the real world works. If someone tells Jack they are his friend, he will believe that without question. That obviously has massive safety implications. Jack also can’t separate reality from fantasy. He would think something he watched in a movie was real life.

We have made some slow progress trying to explain these things to him. He has acknowledged these things when talking to him, but it’s difficult to know if he’s saying things just to shut Mum and Dad up. Jack has learned how to say things, to be able to get what he wants. We had problems explaining this to school at first, but they’ve seen it now. Jack is very clever at getting what he wants.

a different type of video

Jack’s trouble with social interaction

The other problem that Jack has in all walks of life. Is people see this 6 foot tall, well built person and think he is a lot older than he is. Add the fact his understanding levels are less than his age. This leaves a massive gap between what people expect of him and what he can actually do. Although his autistic traits are becoming more profound with age. It is not always obvious to people that Jack is “different”, until he speaks. With new people or someone you bump into out and about. Jack’s anxiety means he can get flustered and mix up his words.

When he talks to people, the conversation can be very one way, unless you know him well. Then you might be able to get a two-way conversation out of him, but only if Jack is willing. So when we found he had been messaging people, what we found was Jack bombarding people with talk about a subject. Often annoying the other person, as he wouldn’t stop.

Easy to understand online safety social story

We talked with school about the issue, and they worked on it at school and provided us with a social story. We now make our own using Twinkl, which is a website I highly recommend. I wanted Jack to still be able to make his videos. It is a great creative outlet for him, and something he really enjoys. But we had to make sure it was in a safe environment, so we went through the social story with him.

Online safety social
Story part 1
Online social story part 2

We took the step of deleting TikTok from Jacks phone, and made it so he couldn’t sign back into it. Unsurprisingly Jack wasn’t happy about this, but we came up with a solution that Jack has accepted. I have the TikTok app on my phone, and he is allowed to use it as long as we see what he’s made before he posts it. To be honest I enjoy watching the videos anyway. Also the messages have to stay turned off.

He asks to have it back on his own phone every now and then, but that’s not happening yet. It does mean I have to give up my phone when he wants to make videos, but I can live with that.

Conclusion

I know what you let your children do online and with technology is a divisive subject. It is an area where Jack thrives and even excels, in a world where he struggles with so many things. For that reason I encourage him in the area as much as possible, but of course always wanting to keep him as safe as possible. That was one of the reasons why this blog was started, to give him a platform where we can do stuff together. Something he is really excited about, and why we have the Jack’s documents section on the website. It’s important to have fun and be creative, but you always have to stay safe at the same time.

Dad Does Autism

Anyone else starting to crack up?

Anyone else starting to crack up?

So it’s basically been 2 weeks of everyone being at home, and not being able to go out. So the question I want to ask is, anyone else starting to crack up? Or is it just me? I’ve got a lot of things I can be getting on with to pass the time, but for the last couple of days I’ve struggled for motivation.

What really hit home yesterday, was I saw it in Lily for the first time. She didn’t want to go outside, she didn’t want to do much of anything. She just sort of moped about, looking fed up. I was in a funny moody, Natalie and the kids would tell you I was being annoying. Basically I was making silly noises, and doing stupid things. It’s something I do quite a lot, I get a sort if release from it. Yesterday was over the top and I got on everyone’s nerves.

In the end we went for a little drive around locally. I’m not sure where you stand with just having a bit of a drive. We didn’t get out anywhere, we just had a bit of a drive. Is that ok? I’m not really sure, but I needed to see some different scenery for my sanity. Everyone else felt the same, and I personally felt much better when we got back. I think everyone did. Jack has started to get more and more agitated, by not being able to follow his normal routines. He’s become very argumentative, but we are just about keeping a lid on it. I just wish I had some answers for him, the uncertainty is the worst part for everybody. For Jack it is even more of a problem.

So is anyone else starting to crack up? Or are you doing ok so far? If you are starting to feel it, what are you doing to try and cope with it? Any ideas are welcome, please leave a comment below.

Dad Does Autism

The first week at home with the kids

The first week at home with the kids

So how is everyone feeling after the first week at home with the kids? I know some might have had them home earlier, and some homeschool all the time. But I think for most of us, at least in England where I live, this was week 1. So how’s it been?

Still having problems with Lily’s ear

It’s gone fairly well for us. The only real problem we’ve had is Lily is still complaining of pain in her ear. She seems fine the majority of the day, but come night time it’s a different story. She has woken up crying every night this week. Jack has coped with it really well, a few times he seems to have slept hrough it. 

One time I went to check on Jack he was awake playing on his Nintendo Switch. It was around 4am. I asked him if Lily woke him up, he nodded yes. I asked him if he was alright, he nodded yes again. He was clearly tense, but he was managing to hold it together, which is really good.

Last night didn’t go so well. Lily woke up crying again, and this time I could hear straight away, Jack throwing things around his room. I went to check him and he had a real look of distress on his face and tears in his eyes. I tried to reassure him, but he just threw things at me, I told him Lily was ok, and left him for a few minutes. When I checked he had calmed down enough to be sat on his bed. It was just one disturbed nights sleep to far.

It’s a frustrating time, due to the situation getting a doctors appointment is near impossible, so you speak to one on the phone and they are guessing what’s wrong. She’s on her second antibiotic now. Fingers crossed this one works. The situation is difficult enough, without that added stress.

Things have generally been good

The day times have generally been good, during the first week at home with the kids. Jack and Lily both seem to be enjoying being at home. They’ve had some fun doing different activities. Jack has been a bit argumentative, which was to be expected, but has been calmer than he was during the recent school holidays. We’ve not pushed him with doing school work. He’s never had any homework, so he’s not understanding why he suddenly has to do work at home. So I’ve got a few ideas for him to learn using things he’s interested in.

Lily didn’t do any work the first few days, I thought it right to give her some time to adjust to what was going on. Then she started doing the work by herself. I’ve seen people trying to be teachers, and it’s almost like a competition with some people on social media. I don’t understand that way of thinking myself. I’m more interested in my children’s well being, than I am making sure they get all the work sheets done.

We are lucky to have a decent bit of garden space, so the kids can get out there for a bit of fresh air and some exercise. They’ve been out everyday, with the exception that Jack didn’t want to go outside yesterday. 

I’m doing ok

I’m holding up alright. I am concerned about the effect of a prolonged lockdown on my depression, but I’m doing fine. I’ve actually enjoyed having the kids home for the most part. Ask me if I still am in 3 or 4 weeks, then maybe my answer will be different, but so far I’m feeling good. I’ve been spending a lot of time at home anyway over the past year, so one week without going out doesn’t bother me. If it becomes 4, 5, 6 weeks, then it will be a different story.

The first week at home with the kids then, up to now it’s been pretty good, everyone’s fit and well, and as long as that’s the case I don’t want to complain about anything else. I hope it’s going as well for everyone else. Families living with autism have extra pressures, and this a really difficult time. But it is difficult for all families. So I say to everybody, stay safe and stay well.

Coronavirus Social Story

Coronavirus Social Story

I wanted to share a coronavirus social story, that was kindly sent to me by someone on twitter. Obviously it is a very worrying time for everybody at the moment. These are unprecedented times in all our lives, and after the announcement from Boris Johnson last night. That we are basically in lockdown, it is getting more and more “real”.

The challenging behaviour from Jack over the weekend rose dramatically, from where it has been recently. It wasn’t a surprise, and I knew it was down to what is happening. Lily is also showing signs that she is struggling. First thing Monday morning she was sick in the bathroom, the first day of no school. This is an ongoing issue with vomiting, that we are not sure if it’s anxiety or allergy related, which I’ve talked about before.

Something amazing

Jack did something amazing yesterday, after sitting down and talking to him. He told us he was scared and confused by the coronavirus. This is such a massive thing. A lot of the problems Jack has, come from not being able to communicate effectively, or express his emotions. So for him to do that was incredible. 18 months ago I would have thought it was impossible. It’s yet more evidence of how far he has come.

He also asked for a Coronavirus social story, to help him understand what is going on. We told him we would get one for him. Last night a very kind person emailed me one. It is very good and Jack is very happy witH it. It’s so important to find a way to explain what’s happening.

Jack had already calmed down and appears less anxious. Of course it will take continuous reassurance, and revisiting this social story. But we will do whatever it takes to make Jack and Lily feel safe.

I thought it only right to share the coronavirus social story in the blog, for as many people to see as possible.

There it is, I hope people find it useful. The autism and SEN community on twitter can be a wonderful and helpful place, as was proved again here. If you want to make your own social story for this or any other subject, I highly recommend Twinkl as a great resource. I hope everyone is coping well in these difficult time, stay strong everyone. Please feel free to share any resources or ideas to help people get through this difficult time. Thank you.

Happy Mother’s Day

Happy Mother’s Day

Happy Mother’s Day! These are difficult times, I’m worried about Jack, but I’m not doing much better. I don’t think Natalie is either, while Lily seems to be doing better she is already talking of missing her friends. But it’s still only right to wish a Happy Mother’s Day to all the mums out there.

It was home made cards from Jack and Lily to their mum this year. Jack made his at school, while Lily made hers at home.

Jack’s on the left, Lily’s on the right

It’s certainly a memorable Mother’s Day, though not really for the right reasons. Unfortunately I spent a lot of the day sorting out a blocked sink. I might go into that more in another post. So basically it was just chilling out at home. What has everyone else been up to? How have you made the most of Mother’s Day? Feel free to leave a comment below.

Inside Jack’s card

Mum was treated to some flowers and a super big box of malteasers, which are her favourite and a good sharing chocolate.

Inside of Lily’s card

As you can see Lily likes to use every bit of space, which includes the back. You can see more of her art work in the Lily’s Art Gallery section. Jack has done some brilliant drawings at school as well, which I will look to put up on here soon. He seems to be able to copy something brilliantly, rather than Lily’s just get a blank piece of paper and draw away approach.

Back of Lily’s card

It’s certainly been an interesting Mother’s Day, I hope everyone’s staying safe and doing ok. Remember to do your social distancing and self isolating if you need to. Fingers crossed we all get through this.

Will the kids be going to school?

Will the kids be going to school?

It’s been a long and stressful week. Mostly around one Question. Will the kids be going to school or not? For some, that question was answered on Wednesday, and at least the situation was clear. We however were in the group of people, where things remained unclear and confusing.

Jack’s situation

Jack has an EHCP and attends a SEN school, which put him in the group that would still go to school. So that makes thing clear right? Wrong! Two days of mixed messages, uncertainty and confusion coming from all quarters. I thought he was staying in school, then I thought he was going to be staying home from today. Finally this afternoon the decision was made that he would stay going to school.

His whole class are staying in school, and we decided for the sake of his routine he will still go. He’s already shown signs that he’s worried about what’s going on. To pull him out of school now, would escalate that and not be good for him. So unless we need to self isolate, it’s business as usual.

Lily’s situation

It’s been just as complicated and stress with Lily. First I though, she finishes school on Friday and that’s it. Then because we have a disability social worker, we thought we were expected to send her to school. We tried to get clarification on this, and we had to wait for answers. Basically no one was really sure what we were meant to do.

The answer came back today. Lily is now off school, but we can send her into school if Jack is at home and struggling. For example, if his anxiety was causing him to be excessively violent, causing the home environment to be dangerous. With Jack at least for now still going to school, that’s not an issue.

How’s everyone finding the situation?

I know it’s not just us, and this is a stressful time for everyone. Will the kids be going to school? Has been the question on all parents minds this week. Lily’s school have sent some work home for her, but the question of how to keep her busy, entertained and still learning is the one that now weighs heavy. At least I know art will keep her happy. How is everyone else feeling? How are you going to keep your kids busy? Any ideas are most welcome. Drop them in the comments.

Is Lego Good for Autistic Children?

Is Lego Good for Autistic Children?

With Coronavirus taking grip of the country, we are staying at home and avoiding the madness. So I got to thinking, Is Lego good for autistic children? I’ve seen a lot of stuff around the subject online, they are even doing Lego based therapy. Where they get children working together, to encourage learning and interaction with others.

That’s not something we have ever tried, but Jack has an incredible love for Lego. I dread to think how much money we’ve spent on it over the years. To make matters worse, most of it is broken up in a big tub. He recently expressed a wish to be able to keep his Lego safe, and not get broken. Which was nice to hear. Oh how he is growing up.

Lily has Lego as well, but it has mostly been built by me. She enjoys seeing the finished product more than the building phase.

The positive points

There’s no intense research done here, it’s just my observations on Jack. And as Lily proves, it won’t be the same with all autistic children. But for Jack, Lego has had a hugely positive impact on his life. Here are the areas I’ve seen a positive impact

  • The building process having a calming effect
  • Learned to do something independently
  • something that keeps him off technology
  • Pride in achieving a finished product

Calming effect


Those are four very important points. Finding things that have a calming effect are so important to autistic people, especially as many also have issues with anxiety. We are forever searching for new calming strategies. Lego isn’t an option if a meltdown is well under way, but as a preemptive tactic to keep Jack calm it works well.

Acting independently

Doing something independently is a huge thing for Jack. It’s not that he doesn’t have the physical capabilities to do things on his own. But getting him to act independently is extremely hard for a variety of reasons. One of the main ones, is Jack needs constant reassurance that he is safe in his environment. In his bedroom he seems to feel more assured, and he’s learnt that is his space. But anywhere else, even other rooms in our house, he needs constant reassurance that he is ok and is safe. In order to be able to concentrate on a task.

With Lego he will sit and build by himself. He will ask for help with putting stickers on, and if pieces get stuck together. Other than that he will do it on his own. Sometimes he asks me to come and build something with him, but I believe that’s because he wants the company.

Keeping him off technology

Jack has some sort of technology going most of the time. It’s part of his way of dealing with his anxiety, coping with his environment and feeling in control. It’s not ideal, but he always needs to have at least some background noise. When outside, and depending on what we are doing his phone might go in his pocket. But that’s about it.

So there will always be something on in the background, whether that’s the TV, music or something playing on his phone like YouTube. But once he is building, his main focus is on the Lego. Jack loves to be outdoors, but when he’s inside it’s difficult to get him away from his Xbox or the TV. Lego is one of the best ways to do it.

Pride in his creations

We all take great pride in achieving something, your autistic children are no different. Autistic people often have difficulty showing emotions in a way that the “average” person understands, but they absolutely feel emotion. Regular readers will already know that Jack & Lily to great pride and excitement from showing off their works on here at Lily’s Art Gallery and Jack’s Documents.

He takes great pride in his Lego, which is why he now wants to make sure they are looked after. He’s still got plenty to build from Christmas and his birthday to keep him busy for a while. Here is what he currently has under his bed to keep them safe.

Answering the question

So to answer the original question. Is Lego good for Autistic children? I think the general answer is yes. Of course nothing is going to be right for everyone, but there’s plenty of evidence to say it’s a good thing. From our perspective it’s been a very good for Jack.

The popular Lego at the moment seems to be Hidden Side, you can find it here on amazon (affiliate link – if you happened to want to buy some Lego, I’d receive a small commission if you used this link) of course Lego is expensive, but there are cheaper alternatives out there that you can find in places likes Wilkinsons and Poundland, or on amazon – click here for another affiliate link.

Does anyone personally, or does their children use Lego a lot, and get as much out of it as Jack does? What other ways do you use as calming strategies? What other interests do people have that keeps them and their children engaged. There are so many ideas out there and I am always looking for new ones. Let me know in the comments below.

Don’t Mention The C Word

Don’t Mention The C Word

It’s a phrase that is used for many different things, but at the moment it can only mean one thing. Don’t mention the C word. Coronavirus. I’ve refrained from talking about it up to now, as I’ve felt no need to. But as the situation escalated here in the UK, today we had our first issue.

Lily has been complaining about pain in her ear. We rang up the doctor and were told they couldn’t see her, as they can’t offer face to face appointments. Instead we got a phone call from a doctor, who prescribed antibiotics despite not being sure what was wrong with her.

Yet Lily is still supposed to be going to school on Monday. It just seems like madness to me. Nowhere spreads a virus quite like a school. Maybe the situation will change by Monday, we will just have to wait and see.

Panic Buying

The panic buying that has been going on, has been a bit ridiculous. But you think about how mad people go at Christmas when the shops are shut for one day. We really shouldn’t be surprised. We went out to get some shopping done today, as it was payday. In three different stores, there’s was no paracetamol, hand sanitiser or hand wash to be seen. One store did have some toilet roll, which appears to be a miracle.

We are fortunate enough to have been able to go out today, and we have some support around us to help us out. That’s not the case for everybody. There are a lot of vulnerable people out there. I wish people had shown a bit more consideration, when buying enough toilet paper to last a year. And don’t even get me started on the fact it’s completely unnecessary for this virus. If diarrhoea was a symptom I’d understand it.

Looking forward

There’s a lot of uncertainty around at the moment, which of course is the last thing autistic people need. Jack especially concerns me. If the schools do get shut, how is he going to handle his routine being changed? The answer is probably badly, he’s already struggling at the moment, so the last thing we need is his routine disrupted. School holidays that we have time to prepare for are problematic enough.

This evening Lily has started to look really poorly. Hopefully it is just an ear infection, and the antibiotics will soon put things right. But the uncertainty caused by not being able to get her seen doesn’t help.

How’s everyone feeling about the Coronavirus? Do you feel prepared for it? Are you worried about how you would cope if there’s a “shutdown”? Or if you caught the virus? Or are you still feeling like it’s a case of, don’t mention the C word? I’d like to here your comments on the situation and how you’ve found things so far. I’m sure I will have plenty more to say over the coming days, weeks maybe even months. It’s going to be a difficult time for everyone, but for those who rely so heavily on routine, this could be the biggest challenge we’ve ever faced.