Yesterday I talked about Jacks trip to the Hospital, to have blood samples taken. This was to check for Chromosome Micro Deletion 15q11.2, which is what Lily has. He is also having a wider array of genetic tests done. This is to also check for other things like Fragile X syndrome, and to see if there’s any reasons for him being so tall for his age range. I mentioned Jack’s social story that he used to help him cope with the experience.
I wanted to share with everyone the social story we used, and how we used it. We don’t use PECS continuously with Jack for everything while at home. However we do when we take Jack out, especially to a new place. There are many different styles of PECS and social stories. Natalie put this one together using Twinkl. Natalie has membership for this website, which allows us access to thousands of resources, such as PECS and a wide variety of educational tools from early years to adulthood, including a fully kitted out section for us parents. There’s also free downloads for those without membership. This is the story we used.
Using the social story
For people who have been around autistic children, this will probably be a familiar sight. If you haven’t then what this is used for is, to explain to Jack what he is going to be doing. Just telling Jack what he is doing isn’t enough. He fails to fully understand what you are saying. He also needs constant reassurance through the whole process.
This is where the pictures are really useful with Jack. We have all the pictures separate and I keep hold of them. I give Jack the first picture and he keeps hold of it. Then as we get ready for the next stage I swap his picture for the next one. This means he has the picture of what he is supposed to be doing. Which he keeps in his hand as a reminder, and he can keep looking at if he feels like he needs to. He also had both of us talking to him, which he also requires.
Yesterday this worked extremely well for Jack. He stayed fairly relaxed for Jack, and coped so well. As with everything autism related. The same things don’t work for everyone, as the spectrum is so wide and varied. But this is something I would definitely always recommend people try, if they haven’t before. Have you used social stories? If you have I’d love to hear about how you found them. Please leave a comment about your experiences with them, positive or negative. Thanks.