The latest look into how Autism effects daily life. On Mondays we have a few hours “restbite”. A couple of workers come from Derbyshire Autism Services and take Jack out. It is something that Jack really enjoys and looks forward to. He gets the 2 to 1 support he needs to go out into the community. Something we find very difficult to do.
I will take him out around where we live on my own. But there has been to many incidents that got too out of control. Because of that I won’t go further afield. Or anywhere likely to be busy on my own with him.
Last night right at the last second. We found out the session had been cancelled. One of the workers had a family emergency and couldn’t come. We know very well. Things happen that change plans.
But this has happened on a number of occasions in the last year. Each time we find out at the last second. There seems nothing in place to provide any cover. It’s all very frustrating. Jack needs a lot of pre warning for any changes. I dread having to tell him.
Luckily today Natalie was at home. So I talk Jack for a walk. He got to catch some Pokemon. Then we had McDonalds for tea, and watched the Scooby Doo movie. Jack was happy with the compromise. So was I. I’m not ashamed to admit McDonald is my guilty pleasure.
The other frustrating thing. Lily misses out on her time without Jack around. Where she gets undivided attention. We did manage to play in the garden for a bit. I was playing cricket, but Lily was hitting home runs. Still it was fun. Jack isn’t very sporty. So it’s nice for me that Lily enjoys sport.
Autism Services are a good thing. Even if occasionally frustrating. Our local one Derbyshire Autism Services, can be found at www.derbyshireautismservices.org