It’s been tough going so far this week. I’m trying not to let things get to me, but I’m finding it impossible not to worry. The Dad Does Autism blog is certainly helping me keep my sanity, but myself and Natalie both have underlying health conditions. Obviously there is concern for our own health, but the impact one of us being hospitalised on the kids would be huge.
Obviously it wouldn’t be easy on any children, but the difficulty in understanding and communicating, means Jack at 12 years old will find it as confusing as a much younger child. Unfortunately we’ve had some experience with this. A couple of years ago Natalie fell and hit her head, it quite quickly became apparent things weren’t right. So we called for an ambulance.
Seeing his mum taken away in ambulance convinced Jack she was going to die. I didn’t realise this at first, he became very quiet and withdrawn. I thought it was the shock of what happened, but Natalie came home later that day and we told him everything was OK. Over the next few days Jack didn’t get any better, and started lashing out. We managed to get him to communicate, that he still thought Mum was going to die. It took a few days using PECS and social stories, but eventually he was happy that mum was not going to die.
Talking about coronavirus
We have talked with the kids about the coronavirus a little bit, they knew the reason they were of school. So we told them there’s a chance we could get poorly, but most people get better. Lily doesn’t seem to phased by it, she doesn’t really understand what it means. Jack on the other hand, keeps getting worked up about it. He’s started saying it’s a zombie virus, and we will all be turned into Zombies.
I’m guessing someone’s said something in a YouTube video. The trouble with letting Jack do things on his own, if he sees a video like that, he will take it literally. The BBC news or people joking around on YouTube, Jack has no concept of the difference. So I’m currently trying to convince there’s not hoards of Zombies roaming the Derbyshire countryside.
Trying to cope
As I said, I’ve started to struggle mentally. So I’m now making a concerted effort to get back on track. Getting outside and doing the daily exercise had ground to a halt. So I’m back out there today, playing some sports with Lily. I’ve always liked to play sport, rather then just do what I call mundane exercise. I don’t mind a walk around somewhere nice, but jogging and going to the gym I’ve always hated.
Then there’s my autism blog, it’s certainly been more difficult to keep up the writing, with the kids always at home. I have managed to do a bit most days, but there needs to be a bit more general organisation. So we can all be a bit more productive. Getting the kids to go to bed, and to sleep is become more and more challenging. They just aren’t getting the stimulation during the day to wear them out. Especially Jack, who has been up into the early hours the last few days. We are trying, but being so limited with what you can do, it’s proving difficult.
Exciting things to come
There are a couple of things I am excited about. I have started writing my first short story, that I plan to share on here. It’s about halfway done. It will be the first time I’ve wrote a piece of fiction and shared it with people in over 12 years. It’s exciting and terrifying at the same time, but I’m so happy this autism blog has given me both the platform and the confidence to do it.
Natalie is also planning to write a piece for the website, which I am really pleased about. It will be about how the relationship between Jack and Lily was built, the strategies used etc.. Natalie really is the “expert” with this stuff, I spent a lot of time at work in the early years and Natalie did a phenomenal job with Jack and Lily. She doesn’t have much confidence with the writing side, so with my help with that side, she’s happy do it. As always teamwork is vital to our success. Hopefully that will be on its way soon.