A Difficult Few Days

It’s been a difficult few days. Lily has had an ear infection, which has involved a lot of crying and not much sleep. Lily has been sleeping in our room, as it’s further away from Jack. It seems to have worked as Jack’s sleep doesn’t seem to have been disturbed. 

On Saturday night Jack asked to go to his Grans with Natalie, while I helped Lily get to sleep. He said he wanted Lily to be able to cry without worrying about upsetting him. Bless him, it was such a nice thing to do. Jack is so kind and thoughtful, but in a meltdown situation that all goes out of the window.

For him to think ahead for the good of himself and others, is such a big step that he is starting to do. He’s had his moments over the last few days, he trashed his room once and has got upset a few times. But generally he has coped really well given the circumstances.

Isolation and routine change

Jacks at respite tonight, he definitely needs the break and so do I. I’m worried that the respite will end up stopping soon, or we end up having to self isolate. Which of course means no school, I’m surprised the schools are still open. I don’t think they will be for much longer.

All that means routine goes out of the window. Jack especially finds routine change extremely difficult, I’ve talked before about school holidays being a problem. So a sudden unexpected change is likely to be very problematic. Whatever happens we will just have to deal with it the best we can. It’s been a difficult few days, but we carry on.

Dad Does Autism

My name is Adam. I live with my partner Natalie, and our 2 children Jack and Lily. Both children are autistic, it is now my mission to show what life around autism is like. Spread the awareness and gain the acceptance that autistic people deserve.

4 thoughts on “A Difficult Few Days

  • March 18, 2020 at 2:41 am

    Definitely sounds like a tough few days! I think you’re right about the schools, especially now everything else seems to be slowly shutting down. I hope the adjustment to the change goes okay, these are tough times for anyone who needs that routine stability


    • March 18, 2020 at 8:37 am

      Thank you, they’re still holding off on the schools 🤦‍♂️

  • March 18, 2020 at 11:28 pm

    Sounds so stressful, hope you guys get through it ok

    • March 18, 2020 at 11:40 pm

      Thank you 😊


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